Search found 90 matches
- Sun Aug 27, 2017 10:19 am
- Forum: General NFFC Discussion
- Topic: Thank you to Greg and the NFFC Family
- Replies: 21
- Views: 11850
Re: Thank you to Greg and the NFFC Family
Been a crazy few months but just wanted to provide an update.... Raine just turned 9 here in May and her numbers have stabilized to where she is in the low 30's which is amazing. Right now we are waiting to head back for more tests in September. We were going every month but now its set up for every...
- Mon Nov 21, 2016 11:50 am
- Forum: General NFFC Discussion
- Topic: Thank you to Greg and the NFFC Family
- Replies: 21
- Views: 11850
Re: Thank you to Greg and the NFFC Family
Just wanted to provide a quick few updates on Raine.... We literally just returned from a one week stay at the amazing Give Kids the World Village in Kissimmee Florida as part of the granting of Raine's Disney Make A Wish. If you do not want to donate to Raine's fund please send them some donations....
- Tue Nov 08, 2016 9:26 am
- Forum: General NFFC Discussion
- Topic: cutline playoffs
- Replies: 3
- Views: 1998
Re: cutline playoffs
I stared at these scenerios all night last night.....and although I THINK i got it figured out....still nervous waiting on official.
- Thu Oct 13, 2016 9:13 pm
- Forum: General NFFC Discussion
- Topic: Thursday players eligible for CUTLINE drops???
- Replies: 2
- Views: 1724
Re: Thursday players eligible for CUTLINE drops???
10. Bidding Time Frame The NFFC Cutline Championship will have just one bidding period during each of the three FAAB bidding time frames. That will be on Friday of Week 2, Friday of Week 6 and Friday of Week 9. The FAAB period will run for all available free agents from that week on Friday at 10 pm ...
- Thu Sep 08, 2016 9:23 am
- Forum: General NFFC Discussion
- Topic: Thank you to Greg and the NFFC Family
- Replies: 21
- Views: 11850
Re: Thank you to Greg and the NFFC Family
Just had our most recent check up and we got some great news and a little bad news...but overall it was a great visit. The daughters pressure on her heart dropped from 37 to 31 (started at 81 and 25 is normal). This means the meds are working and a heart transplant is not in the immediate future for...
- Mon Jul 25, 2016 2:50 pm
- Forum: General NFFC Discussion
- Topic: Thank you to Greg and the NFFC Family
- Replies: 21
- Views: 11850
Re: Thank you to Greg and the NFFC Family
Just wanted to give the NFBC/NFFC family a quick update on my daughter as we hit the one year mark of her diagnosis of her pulmonary hypertension. The summer has been brutal but we have been keeping her indoors and so far so good. We go back in September for her next big check up on her heart in Peo...
- Fri Mar 04, 2016 10:30 am
- Forum: General NFFC Discussion
- Topic: Thank you to Greg and the NFFC Family
- Replies: 21
- Views: 11850
Re: Thank you to Greg and the NFFC Family
Just a quick update from the latest visit to the childrens hospital in Peoria... The daughters MPAP number remains at 37.. (25 is normal..and considered at the high end).....which is a good and bad thing. Good that it did not go up....bad that it might mean her body is adjusting to the medicine. We ...
- Wed Dec 23, 2015 6:18 am
- Forum: General NFFC Discussion
- Topic: Thank you to Greg and the NFFC Family
- Replies: 21
- Views: 11850
Re: Thank you to Greg and the NFFC Family
Just another thank you to all those that have donated recently.....huge props and my family is more than appreciative of this. With the deductible for Blue Cross starting over in January this will go a long way in helping offset that. Thanks again to Greg,Tom and the whole NFFC/NFBC family. Make a W...
- Fri Dec 18, 2015 12:20 pm
- Forum: General NFFC Discussion
- Topic: Thank you to Greg and the NFFC Family
- Replies: 21
- Views: 11850
Re: Thank you to Greg and the NFFC Family
Posted this over on the NFBC forums but it holds the same weight here... Thanks guys....we are still seeing people from the NFBC and NFFC donating.....simply amazing. Appreciated beyond what I can express in a forum post. Its a lifelong battle for my 7 year old autistic daughter but I swear she is p...
- Sun Dec 13, 2015 5:09 pm
- Forum: General NFFC Discussion
- Topic: Thank you to Greg and the NFFC Family
- Replies: 21
- Views: 11850
Re: Thank you to Greg and the NFFC Family
Just wanted to provide an update on my daughter. Our most recent stay in Peoria resulted in her MPAP score getting down to 37...this is great news as 45 has always been the magic number for her to get out of the heart failure in the short term. Thanks again to everyone for their support.....its stil...