Re: Thank you to Greg and the NFFC Family
Posted: Mon Nov 21, 2016 11:50 am
Just wanted to provide a quick few updates on Raine....
We literally just returned from a one week stay at the amazing Give Kids the World Village in Kissimmee Florida as part of the granting of Raine's Disney Make A Wish. If you do not want to donate to Raine's fund please send them some donations. Just an amazing place.
A huge thank you to the people of Make a Wish Illinois for setting the Wish up and Raine had an amazing time and as a family we have memories that will last a lifetime.
We head back to Peoria in January to test for cystic fibrosis. Raine is coming off an extended bout with pneumonia and her pulmonologist wants to see if she tests positive for CF as that could be the cause of her PH.
Thank you again to everyone that continues to lend support to Raine's PHight.
We literally just returned from a one week stay at the amazing Give Kids the World Village in Kissimmee Florida as part of the granting of Raine's Disney Make A Wish. If you do not want to donate to Raine's fund please send them some donations. Just an amazing place.
A huge thank you to the people of Make a Wish Illinois for setting the Wish up and Raine had an amazing time and as a family we have memories that will last a lifetime.
We head back to Peoria in January to test for cystic fibrosis. Raine is coming off an extended bout with pneumonia and her pulmonologist wants to see if she tests positive for CF as that could be the cause of her PH.
Thank you again to everyone that continues to lend support to Raine's PHight.