Thank you to Greg and the NFFC Family
Posted: Sat Aug 22, 2015 7:33 pm
First off I would like to the whole NFFC/NFBC family for the last several years.It has been brought be great joy (and frustration when losing is the norm lol) to play amongst the best fantasy players in the world.
I am posting here after a couple email exchanges with Greg.....who along with Tom....have always answered EVERY email I have ever sent over the past several years....which is impressive considering the sheer amount of emails, phone calls..etc..etc that they must get.
So again...thank you.
It is with Greg's blessing that I am swallowing a ton of pride and am looking to raise some awareness about my seven year old daughter.
She was diagnosed autistic when she was three and several weeks ago we found out that she has Primary Pulmonary Hypertension. The life expectancy for this is 2-3 years......but because of her age and because we caught it BEFORE any damage to her heart....well there is a chance for her.
She is currently being treated at the Childrens Hospital here in Peoria Illinois.
We got back on August 25th in hopes of finding out that her meds are working and that a heart/lung transplant is NOT needed.
With that said.....I am asking for prayers, best wishes or whatever good karma I can get for my daughter.
My work insurance is awesome and out of the 162k worth of bills so far...we only owe 4600 out of pocket. It is with that in mind that I set up a gofundme for her so that we can at least get the meds paid for in full for one year.....and with anything else going towards bills...especially considering there is no cure for this and it will be a life long battle for her.
If nothing else I just ask everyone to go to the page I set up and READ what I posted as it contains her story with this condition. If one person can get some comfort in knowing that they are not in this battle alone...well thats a win in my book.
This is the first year in several that I will not be playing in the NFFC (last year was my first try at the Primetime and finished second in the league) and that is solely because I cannot justify even signing up for an online league when these bills and her meds are so expensive.
So if any of you are able to donate after signing up for your leagues...that would be greatly appreciate...you have no idea how much.
Again thank you to Greg for allowing me to post this and also thanks to KJ Duke who was one of the first ones to donate when I made a small note on the baseball forums.
Thanks again and please at least read the info here and watch the thank you video from the person that truly holds my heart in her hands..my daughter Raine.
http://www.gofundme.com/raineolesen
I am posting here after a couple email exchanges with Greg.....who along with Tom....have always answered EVERY email I have ever sent over the past several years....which is impressive considering the sheer amount of emails, phone calls..etc..etc that they must get.
So again...thank you.
It is with Greg's blessing that I am swallowing a ton of pride and am looking to raise some awareness about my seven year old daughter.
She was diagnosed autistic when she was three and several weeks ago we found out that she has Primary Pulmonary Hypertension. The life expectancy for this is 2-3 years......but because of her age and because we caught it BEFORE any damage to her heart....well there is a chance for her.
She is currently being treated at the Childrens Hospital here in Peoria Illinois.
We got back on August 25th in hopes of finding out that her meds are working and that a heart/lung transplant is NOT needed.
With that said.....I am asking for prayers, best wishes or whatever good karma I can get for my daughter.
My work insurance is awesome and out of the 162k worth of bills so far...we only owe 4600 out of pocket. It is with that in mind that I set up a gofundme for her so that we can at least get the meds paid for in full for one year.....and with anything else going towards bills...especially considering there is no cure for this and it will be a life long battle for her.
If nothing else I just ask everyone to go to the page I set up and READ what I posted as it contains her story with this condition. If one person can get some comfort in knowing that they are not in this battle alone...well thats a win in my book.
This is the first year in several that I will not be playing in the NFFC (last year was my first try at the Primetime and finished second in the league) and that is solely because I cannot justify even signing up for an online league when these bills and her meds are so expensive.
So if any of you are able to donate after signing up for your leagues...that would be greatly appreciate...you have no idea how much.
Again thank you to Greg for allowing me to post this and also thanks to KJ Duke who was one of the first ones to donate when I made a small note on the baseball forums.
Thanks again and please at least read the info here and watch the thank you video from the person that truly holds my heart in her hands..my daughter Raine.
http://www.gofundme.com/raineolesen